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發表於 2012-2-9 05:07 AM | 只看該作者

[亞洲] Dreaming of marriage and a day they might be hair-free: The werewolf sisters afflicted by rare genetic mutation

Dreaming of marriage and a day they might be hair-free: The werewolf sisters afflicted by rare genetic mutation公仔箱論壇8 l7 Z3 M& m7 t( @ `( I

The Sangli sisters are covered from head to foot in thick hair
Siblings hope to fund laser surgery to cure them

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It is one of the rarest conditions in the world, affecting just one in a billion people.

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However, in an incredible quirk of fate, three sisters have all been blighted by a condition known as werewolf syndrome - where they are covered from head to foot in thick hair.

Savita, 23, Monisha, 18, and 16-year-old Savitri Sangli, who live in a small village near Pune, central India, inherited the
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All three struggle to keep the condition under control with cream and hope they one day might eventually be able to pay for specialist laser treatment to rid them of their excessive hair.

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Brave (from left to right): The lives of Savita, Monish and Savitri Sangli have been blighted by one of the rarest conditions in the world - werewolf syndrome5.39.217.769 R- X6 N( i9 e- p/ K: Q

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Genetic: The girls stand in front of a picture of their father with their mother (front middle) and two of their other sisters who are unaffected by the disorder5.39.217.76, v& J! O- ^2 t: h! v$ f
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Despite the devastating effects of the syndrome, the siblings still dream of a day when they might get married.

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Hypertrichosis universalis is a genetic mutation, in which cells that normally switch off hair growth in unusual areas, like the eyelids and forehead, are left switched on.

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It means the girls have had abnormal hair growth on their bodies and even their faces, affecting their eyebrows, nose and giving them appearance of having a beard.

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They must use a special cream every day - otherwise the hair will quickly return. The youngest sister Savitri is still virtually covered in hair.) V% a. d& @ @; s# K

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One in a billion: The sisters, pictured with their mother, inherited the condition from their father0 v- a8 @6 M9 y0 V! O

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Documentary filmmaker Sneh Gupta is planning make a film of the girls in a bid to help their dream of becoming almost hair free - with the eventual aim of finding marriage) K+ Q) P+ x$ j9 \. G$ U
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The girl's mother Anita Sambhaji Raut has six daughters in total with only three having werewolf syndrome.

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The condition was passed down by the girls' father, who Anita was forced to marry aged at the age of 12.

Because theirs was an arranged marriage and she did not lay eyes on him until the wedding day, she had no idea he was suffering from the condition himself.公仔箱論壇+ I* H4 _& S, ~6 t! X

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Anita and her daughters are now desperate to fund laser surgery that will help to finally remove the curse of excess hair and allow the girls to lead normal lives.

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In their small village near Pune, central India, the Sangli have little prospects for marriage and the eldest Savita sometimes gets sent home from work when her hair begins to show.

Laser surgery would cost 350,000 Indian rupees - or £4,500 per girl - but the family are not wealthy enough to be able to afford it.

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Now documentary filmmaker Sneh Gupta is planning make a film of the girls in a bid to help their dream of becoming almost hair free - with the eventual aim of finding marriage.

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Mum Anita, 40, said her husband - who died in 2007 and whose portrait hangs in the family home - also suffered from werewolf syndrome.

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Anita was being looked after by her uncle and auntie as her parents had passed away and they told her if she didn't marry this man they would kill her off.

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She said: 'It was only on the day of my marriage that I discovered what he was, (he) was hairy on his face, ears and body, that's when I found out.

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'I was very young, I didn't know what kind of boy he was, he scared the hell out of me when he arrived at the altar. He's the groom, I am the bride, I had no idea what all that meant.

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'I was only 12 when they forced me into marriage, and if you don't agree to marriage as a girl they will kill you off.

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'I asked my mother-in-law why my daughters were born like this and she told me because their father is like this, at the time (as a baby) my daughter had little hairs all over her face.

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'When I used to take her (Savita) out as a child, they used to shout here comes the beast, the witch, that's what they said.

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'They keep her at work now for 10 to 15 days, and then after that they ask her to leave as soon as the hair starts showing through, that's what they do.

'I tell people this is the type of girl she is, hair grows on her face, she has to apply medicine, we must be honest with everybody.'

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In the village society a woman does not have much prospects if she is not married and mum Anita explained she was still trying to get her daughters a man.

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She said: 'If a good proposal comes in, I'll get her married. If nothing comes in she'll have to work and survive. As long as I am living I have to keep trying.'

Eldest daughter Savita, who now using a cream to try and combat her hair growth, said: 'When I used to go to school the boys and the girls would shout, 'hairy face', 'horrible looking', 'don't sit next to her', that's how they behaved.

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'Marriage is not an option for us, it's not likely to happen, who is going to marry us when hair keeps growing on our faces.'

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